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April Is Sjogren's Syndrome Awareness Month

Saturday, April 6, 2013


About Sjögren's Syndrome :

Sjögren’s is a chronic autoimmune disease in which people’s white blood cells attack their moisture-producing glands. Today, as many as four million Americans are living with this disease.

Although the hallmark symptoms are dry eyes and dry mouth, Sjögren’s may also cause dysfunction of other organs such as the kidneys, gastrointestinal system, blood vessels, lungs, liver, pancreas, and the central nervous system. Patients may also experience extreme fatigue and joint pain and have a higher risk of developing lymphoma.

With upwards of 4,000,000 Americans suffering from Sjögren’s, it is one of the most prevalent autoimmune disorders. Nine out of 10 patients are women.

About half of the time Sjögren’s occurs alone, and the other half it occurs in the presence of another autoimmune connective tissue disease such as rheumatoid arthritis, lupus, or scleroderma. When Sjögren’s occurs alone, it is referred to as “Primary Sjögren’s.” When it occurs with another connective tissue disease, it is referred to as “Secondary Sjögren’s.”

All instances of Sjögren’s are systemic, affecting the entire body. Symptoms may remain steady, worsen, or, uncommonly, go into remission. While some people experience mild discomfort, others suffer debilitating symptoms that greatly impair their functioning. Early diagnosis and proper treatment are important — they may prevent serious complications and greatly improve a patient’s quality of life.

Since symptoms of Sjögren’s mimic other conditions and diseases, Sjögren’s can often be overlooked or misdiagnosed. On average, it takes nearly seven years to receive a diagnosis of Sjögren’s. Patients need to remember to be pro-active in talking with their physicians and dentists about their symptoms and potential treatment options.

Since the disease was first identified in 1933 by Dr. Henrik Sjögren, it has been proven to affect virtually every racial and ethnic group. General awareness about Sjögren’s is still lacking and increased professional awareness is needed to help expedite new diagnoses and treatment options.

Newly diagnosed patients may find the video Sjögren’s Syndrome: A Place To Begin to be a helpful resource when starting your education on this debilitating disease:

When a person is diagnosed with Sjögren’s, they often don't know where to begin. This program will introduce you to three Sjögren’s patients who will share their journey with you. In addition, you will hear from Sjögren’s experts about the causes, treatments and manifestations of Sjögren’s. From there, we hope you will have a place to begin as you develop a partnership and treatment plan with your physician.

Source: http://www.sjogrens.org/home/about-sjogrens

Primary Sjogren's syndrome occurs in patients who have no other rheumatic disease. Secondary Sjogren's syndrome develops in patients who do have another rheumatic disease, usually lupus or rheumatoid arthritis.

Sjogren's syndrome is a treatable condition. With effective treatment, most Sjogren's syndrome patients can live well. Much more is now known about Sjogren's syndrome than when it was discovered by Henrik Sjogren in the early 20th century. Here are 10 things you should know about Sjogren's syndrome.

Sjogren's Syndrome - 10 Things You Should Know



4 comments:

  1. Great post! Thanks for spreading awareness! Ty for adding my button to your page too! I added yours to my page as well. Your blog is in my blog roll list as well now too :) Have a great weekend!

  1. Thomas Marlowe said...:

    Thanks for the new information - always good to have my awareness raised.

  1. Demitria said...:

    Thank you so much for sharing about this disease! I am officially one more person aware of Sjogren's Syndrome!



    New follower...http://demitrialunetta.blogspot.com

  1. Very informative!

    I've never heard of this syndrome before.

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